People who suffer from Lyme disease may also often be vulnerable to mold illness. I won’t go into it here why that is, but in this post I am going to discuss treatments that I have used that apply to either or in some cases both. In this post I will discuss only that which I’ve tried post Lyme/mold diagnosis. It is my hope that as we who have or had Lyme or mold illness continue to share information with each other we can get better quicker! I would love to hear what you have tried. Please post below in the comments section.
Cats-a-tonic, Cats Claw herb, good for fighting Lyme bacteria and supporting the immune system.
Cholestyramine for binding Lyme bacteria and toxins. Oh the dark days of cholestyramine. This was the first thing I tried post MD diagnosis. This drug originally designed to curb cholesterol is heavy duty to the max and definitely worked in that it was pulling so much garbage from my cells that my liver simply could not keep up. It is the ultimate binder. On the positive side taking the drug revealed that my body was one giant garbage dump of myco and biotoxins and there was definitely more than plenty for the cholestyramine to bind to. On the negative I felt like hell and cancelled work for at least a week. I was in bed most of the time and when I wasn’t I remember going to rehearsals barely able to have the strength to even walk or think. My tongue started to coat and I was losing my sense of taste. Not good signs. I began coffee enemas as a way to help my liver cope, aiding it in the detox. The coffee enemas definitely helped reduce the misery, but in the end I couldn’t handle it. I was permanently wasted and my doctor said that that could be doing me harm. If the liver can’t process the toxins then they go back in the body, causing a lot of misery for little benefit. After about a month I ceased taking it. It’s also awful to drink, sticks to your teeth and can eat away at the enamel on your teeth.
Coffee enemas for liver detox and parasite removal. So while I began coffee enemas for the purpose of liver detox to my horror parasites began coming out. I had no idea. I will stop right there and maybe when I’m brave enough I’ll do a post about it. From what I’ve read many poor Lymers have parasites and doctors don’t know what to do. Classic American thinking is that we don’t have a problem in this country. I can tell you we have a problem and unfortunately there is little medical information here and most drugs need to be ordered from outside the US.
I figure that it is better to have parasites in the toilet rather than inside one’s body so I have continued with the coffee enemas. I use S.A. Wilson’s coffee specifically roasted to be used for coffee enemas. I have continued to be amazed at the healing power of coffee enemas. Weird but true. Coffee enemas- parasites? Gross? Bizarre? Well Lyme disease ain’t no joke or for the faint of heart.
Charcoal for binding toxins and bacteria. This is a staple here for both Lyme and mold symptoms. It’s very helpful and important in getting the bad junk OUT! I don’t experience anything negative when taking. It’s just messy, but you can get it in pill form. It is much gentler than the cholestyramine.
The Wiegman Protocol for Lyme consists of Pulsing antibiotics/Ivermectin/Triobiotics while daily ingesting apricot kernels and Cherry Bark serum, Pinella Bark, Vitamin D and B complex. I think this protocol did cause a lot of die off and that means it definitely had healing properties. While not a fan of antiobiotics, the pulsing was gentle and low dose. Also the logic of the protocol is one that is well researched and intuitively makes sense. Perhaps not dramatic results, but any die off is a positive result. I had the most die off with the Triobiotics.
VRM2 for killing parasites, a nasty coinfection from Lyme-taxed immune system. This supplement is taken 10 days on, 6 days off. I repeated this cycle probably for a year. It definitely helped me to feel better as it was obviously attacking the parasites, but in the end the infection was far too advanced.
Mimosa Pudica for killing parasites. This supplement also helped but could not cure.
Alinia for killing parasites. This was my next try in the battle against parasites. The cost in US is I believe over $12,000. I was able to purchase it from Canadian Online Pharmacy for I believe less than $100. I was on this for one month. This was a good try as this is a very strong drug and I believe it will work well in tandem with other drugs long term. It is a part of the Klinghardt parasite protocol. I experienced major die off from this, more so than from the natural supplements, but in the end the infection was way too advanced for this drug to smite the population in only one month and it is not meant to be used alone for long term.
Klinghardt parasite protocol: The drugs required for this protocol totaled over $18,000 in the US. I was able to get them all through the Canadian Pharmacy for just over $200. This is a heavy guns approach to parasites requiring a year rotation of about 5 different drugs. Additionally taking the drugs is only one part of his more comprehensive protocol of which the information on the web is chaotic and confusing. The overall entire protocol involves so many moving parts I don’t know how any one could have the chance of piecing the information together to form a cohesive plan. However, concerning the pharmaceutical aspect as was prescribed from my doctor I have all the drugs in a cupboard ready to go but I am going to try one more herbal protocol before going ahead with the Klinghardt. I want more than anything to be healed from the infection but I don’t want to invoke more damage on my microbiome if at all possible.
Herbal parasite protocol: This is on its way. I am eager to begin it! Update later.
Glutathione Liposomal for detoxing from mold. I noticed a tangible difference in my energy levels after I began taking this. This is a keeper!
Shade’s Bitters No. 9 for detoxing from mold. This is part of the Gluthione Liposomal protocol.
Buhner Protocol for Lyme: this is my next plan after I finish the herbal parasite protocol.
The ultimate elimination diet: beef, salt and coffee. Many people have reported incredible healing from major illnesses after ingesting only beef and water long term. I am currently giving it a try. At the time of this writing (7/19) I am in my 6th week. I have lost weight, reduced bloating, parasites are in remission, stabilized blood sugar, my joints feel more supple and I always feel good after eating. It’s enough positive changes to keep going with it in spite of the obvious difficulty of such a diet.
Sauna for detoxing. I have heard and read a lot about the powerful detoxing benefits of saunas. Infrared are the most recommended, but visits are very expensive unless you own your own. Traditional saunas can provide much benefit, perhaps with longer sessions. I just joined the YMCA for this purpose alone. Update to come!
Ripping up carpets to eliminate any source of mold and allergens, and indeed there was mold on the back of the carpet in my bedroom. I felt so much better after this that my doctor decided to change the strategy and fight the mold illness as priority over Lyme.
Quercetin- Fish Oil- Curcumin for allergies/inflammation. This combo is a game changer. Spring time rolls around and my body burns, hurts and feels inflamed. This combination immediately sinched the inflammation and life returned to normal (as it gets.)
Epsom salt baths for continual detox and magnesium supplementation. This is an essential part of my routine. Because my body consistently gets locked up with sore, hurting muscles the magnesium infusion is serious therapy. Also because since every approach to healing from Lyme and mold involves binding toxins and bacteria, the liver is under huge stress. Epsom salt baths help in the detoxifying process.
Ph/ Polar minerals from Premier Research for electrolyte balance. I cannot live without these. They have made a tremendous difference in the quality of my life. I cannot do any intense physical activity without chugging these daily. Staple.
Magnesium. This is a part of the Ph/Polar mins but it deserves its own space because if I do not take magnesium and Vitamin D which helps to aborb magnesium my brain starts doing weird things. When I start having invasive thoughts I know it’s time to up the D/Mag.
Egoscue exercises and stretches. I have tried yoga, Feldenkrais, Alexander, chiropractic, tai chi, physical therapy and probably more in between, but nothing has provided me with results like Egoscue. I was able to increase my playing time from 2 to 4 hours a day, change the way my body looked by realignment, drastically reduce pain and have the most essential tools in my kit for daily postural, strength maintenance especially as it relates to playing the violin for hours a day. This was one of the biggest game changers. Thank you Mackie!
Regular sleep. People dealing with Lyme and mold illness require longer than average sleep.
Being outdoors. Truly the life-giving properties of the sun and fresh air while on extended weeks long adventures has me feeling the best I ever do, my symptoms are at a minimum.
Minimizing stressors such as flourescent lights, bright lights, food sensitivites, chronic stress, computer overuse, chemicals, alcohol and physical overexertion help to keep symptoms at bay.
Icing for pain. This is definitely a tool in my box. Lyme has my body less able to repair itself and withstand physical exertion. Constant time on the violin flares symptoms.
Gonna Get Well 